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PROJECT LAUNCHING WORKSHOP

On #January 2, 2024, the #Parkinson‘s Patient Support Organization Ethiopia conducted an exceptionally successful workshop, marking the launch of its latest project focused on raising awareness and building capacity for #Parkinson‘s disease.
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Transforming Parkinson’s Care in Africa (TraPCAf):

Transforming Parkinson’s Care in Africa (TraPCAf) is a multi-faceted, mixed-methods, multi-national research grant spanning seven work packages. The grant is funded by the National Institute for Health and Care Research (NIHR) (NIHR133391) using UK aid from the UK Government to support global health research.

Intervention Area​

The founder of this organization is kibra Kebede, a dedicated Parkinson’s patient. She struggled to establish this organization, because she faced the problem of lack of information, and suffered from loss of social interaction and stigmatization.
PPSO-E is a non-governmental indigenous charity organization established in May 2011 and registered under the charities and social agency of the Federal Government of Ethiopia.
Parkinson’s is a disease that hinders all forms of movement Parkinson’s disease is a progressive and degenerative disease of the central nervous system caused by the loss of dopamine in the brain. It brings movement disorders and has motor and non-motor symptoms.

Awareness Raising

Through all possible media intervention; FM radio, TV, workshops, events, PD patients experience sharing, information, communication education(IEC) materials .

Capacity Building

Physiotherapy for patients, speech therapy for patients, empowerment training for caregiver and health extension workers how to identify PD patients, enable health journalist how to broadcast PD issues,

Care and Support

Home care service, Medical Service, Toilet Construction, Daily subsistence support like; clothing, sticks , wheelchair, Holy day support, Consultation service.

Caregiver Economic Empowerment

Addressing financial constraint and minimize economic impact on the livelyhood PD patients' caregivers. (IGA - income generating activities)

Research

Parkinson's research is important in Ethiopia because it can help improve the diagnosis, treatment, and management of the disease. By conducting research in, policy makers and professionals can gain insights into the unique challenges and factors that may contribute to Parkinson’s. =>

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<= This knowledge can lead to the development of more targeted and culturally appropriate interventions and therapies. Additionally, research in Ethiopia can help raise awareness about Parkinson's and advocate for better healthcare resources and support for individuals living with the disease.

Core value of the organization

The PPSO-E strives to treat people with Parkinson’s disease with compassion, empathy, and respect.

The PPSO-E believes in working collaboratively with other organizations, healthcare providers, and people with Parkinson’s disease to achieve their shared goals.

The PPSO-E is committed to advancing its services and promoting the burden of the disease in the treatment and care of people with Parkinson’s disease.

The PPSO-E upholds high ethical standards in all its actions and is committed to transparency and accountability.

The PPSO-E is dedicated to promoting diversity, equity, and inclusion in all aspects of its work

" I am Stronger Than Parkinson Disease "

These qote was written by Kibra Kebede the founder of parkinsons patient support organization Ethiopia(PPSO-E)
Winner of AWiB’S woman of excellence 2018 and winner of Ethiopian begosew award (Kind person)of the year on 2022 in the helping the live of Parkinson patients and their families. It was a well deserved award. So great when PPSO-E makes news for something positive.

Why We Are Working On Parkinson and Their Family

PPSO-E’s intervention aim to improve the quality of life of these patients and their caregivers, by awareness raising, capacity building and care and support, and let them live a life where they are considered and supported unlike past times. If awareness is raised, patients will be aware of their condition and caregivers will know how to care for them, government and other stalk holders will know about Parkinson and support the patients, which will be a means to improve their life and open ways to address their needs.

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